Grieving for our child who had disabilities or complex needs

One of a series of leaflets published by The Compassionate Friends Going forward “It has been a privilege and an honour to be the mum of a disabled child. My whole world has changed since she is gone from my sight, but I will have her in my heart always.” Our child was an individual. Their sense of humour, their personality, their likes and dislikes, their hobbies and interests are all part of who they were. As we remember them, the limits of their condition or disabilities may fade in importance as we focus on other elements of their life. We can enjoy talking or writing about them, keeping a memory box, or honouring their memory in other ways. Our children have taught us much. Their legacy includes all that we have learned about love, joy, patience, perseverance, courage and acceptance through them. We are proud to have been their parents, and we will carry them in our hearts for ever.